Healthcare Improvement Scotland
NHS Education for Scotland (NES)
NHS Scotland Knowledge Network
Scottish Public Services Ombudsman – Guidance on apology
STAR – Supporting Training, Appraisal and Revalidation
Online CPD resources for medical educators in Scotland including modules on effective feedback from NHS Education Scotland
NHS Leadership Academy (Leadership Frameworks for doctors and other clinicians)
Realistic Medicine in Scotland – Practising Realistic Medicine 2017; Realising Realistic Medicine 2016; Realistic Medicine 2015;
Asking the Right Questions Matters
Choosing Wisely UK – 5 questions to ask your doctor or nurse about tests and treatments
Choosing Wisely Canada – 6 things students and trainees should question
Patient-centred care resource centre managed by the Health Foundation
MAGIC – Shared decision-making programme
Shared Decison-Making Collaborative (hosted by NICE – National Institute for Heath and Care Excellence)
Kings Fund – resources on shared decision-making
Three-talk model of shared decision-making (2017 BMJ article)
Patient Decision Aids – well developed and evidenced tools to support better shared decision-making and evaluation from the Ottawa Hospital Research Institute. Includes the brief SURE tool for decisional conflict and the DSAT-10 Decison Analysis Tool
Option Grids: outcomes for common clinical problems
Decide Collaborative: European Union project on communication strategies to support informed decisions
CollaboRATE – a simple, patient reported measure of shared decision-making
Talking Mats – tool design by speech therapists to improve conversations with people who have communication difficulties
Beyond Words – library of resources (some free and some subscription) using pictures instead of text for communication
Talking-Points: A person-centred approach to outcomes focused health and social care planning
UK policies and resources
Scottish DNACPR Policy and Resources
(Including policy for Children & Young People = CYPADM)
NHS Education for Scotland – training videos:
Anticipatory care planning and DNACPR
NHS Scotland DNACPR policy and practice
Scottish National Anticipatory Care Planning Programme (Health Improvement Scotland)
Decisions relating to cardiopulmonary resuscitation
(British Medical Association, UK Resuscitation Council, and Royal College of Nursing)
Early Palliative Care – BMJ Analysis by Murray & Boyd (2017) – benefits of early identification, holistic assessment and anticipatory care planning for people living and dying with different conditions and illness trajectories. Educational videos on starting Early Palliative Care for professionals and for public awareness events
Building on the Best (Introductory video) – Macmillan Cancer Support funded programme in acute hospitals to develop person-centred communication tools for professionals and information leaflets for patients/ families about deteriorating health, anticipatory care planning and care towards the end of life.
Talk CPR – Discuss DNACPR – public awareness resources to inform and involve patients and families in talking about CPR; some professional resources; developed in collaboration with the Dying Matters in Wales programme
GMC and Age UK – Advance care planning – Commentary comparing advance and anticipatory care planning
Let’s talk about death and dying – Age UK booklet and video for patients and families
Macmillan Cancer Support – Advance/ Anticipatory Care Planning Report: Missed Opportunities
Sensitive and effective conversations about end-of-life care after acute stroke
(Chest Heart & Stroke Scotland)
ReSPECT Project – Recommended summary plan for emergency care and treatment
International resources
The Advance Project (Training videos and resources to promote earlier identification in primary care of people who can benefit from advance care planning and palliative care, Australia)
Advance CPR decision-making in the hospital setting
(Educational resources for professionals) Health Department, Government of Western Australia
Respecting Choices (Advance care planning programme developed in Wisconsin, USA)
Serious Illness Care Program (Resources and training; Boston, USA)
– Serious illness conversation guide
– Reference guide for clinicians
– RCT Serious illness programme
UK Serious Illness Care programme – linked to Boston programme and aiming to improve conversations about goals & priorities
Think Ahead (Planning for death & dying) (Resources and advice for the public and professionals from the Irish Hospice Foundation)
Best Case/Worst Case Communication Tool (Structured approach with graphic decision-aid to support conversations about high risk surgical interventions when outcomes are likely to be poor, USA)
CLEAR Conversations Project (Henry Ford, Detroit, USA)
NURSE (A way of responding to emotional distress from the VitalTalk programme)
Health Talk – database of patient/ carer accounts of healthcare experiences including communication with health professionals
Patient information – leaflets and online resources: Patient.co.uk and NHS Inform
Books beyond words- Resources for people with disabilities
National Voices
National Voices is the national coalition of health and social care charities in England. We work together to strengthen the voice of patients, service users, carers, their families and the voluntary organisations that work for them.
Cochrane Collaboration – Patient Resources
Ask Me 3 – USA -National Patient Safety Foundation tool to promote patient participation
The Listening Project – a BBC radio and British Library partnership collecting and archiving conversations between friends and relatives about all aspects of life.
Talk CPR – Discuss DNACPR – public awareness resources to inform and involve patients and families in talking about CPR; some professional resources; developed in collaboration with the Dying Matters in Wales programme
The Conversation Project – Public involvement in advance care planning,USA
Talking about death and dementia – Altzheimer Scotland resources and video collection
EACH: International Association of Communication in Healthcare
Vital Talk – a nonprofit organisation based in the USA and specializing in developing and facilitating advanced communication skills courses and faculty training courses focused on balancing honesty with empathy when discussing serious illness and end of life care. Guides to effective communication in different challenging situations.